Breakthrough blood test developed for Brain Tumours. Link

(2020). Neurotransmitter-derived lipidoids (NT-lipidoids) for enhanced brain delivery through intravenous injection. Science advances, 6(30), eabb4429-eabb4429. https://doi.org/10.1126/sciadv.abb4429

• Click here for the Plain English Summary of the above paper by Steven Hobbs D.C. Professor of Biology

(2020). A cytoskeleton regulator AVIL drives tumorigenesis in glioblastoma. Nature Communications, 11(1), 3457. https://doi.org/10.1038/s41467-020-17279-1

FDA Drug Safety Communication: FDA warns that gadolinium-based contrast agents (GBCAs) are retained in the body; requires new class warnings

Information on Gadolinium-Based Contrast Agents

(2018). Fenbendazole acts as a moderate microtubule destabilizing agent and causes cancer cell death by modulating multiple cellular pathways. Scientific Reports, 8(1), 11926. https://doi.org/10.1038/s41598-018-30158-6

(2020). Near real-time intraoperative brain tumor diagnosis using stimulated Raman histology and deep neural networks. Nature Medicine, 26(1), 52-58. https://doi.org/10.1038/s41591-019-0715-9

• Click here for the plain English summary of the above paper by Steven Hobbs D.C. Professor of Biology

(2018). Quality of life after surgery for intracranial meningioma. Cancer, 124(1), 161-166. https://acsjournals.onlinelibrary.wiley.com/doi/full/10.1002/cncr.30975

(2019). Gamma Knife Radiosurgery for Postoperative Remnant Meningioma: Analysis of Recurrence Factors According to World Health Organization Grade. World Neurosurgery, 132, e399-e402. https://doi.org/https://doi.org/10.1016/j.wneu.2019.08.136

(2019). Hypofractionated stereotactic radiotherapy for intracranial meningioma: a systematic review. Neuro-Oncology Practice, 6(5), 346-353. https://doi.org/10.1093/nop/npy053An LXR-Cholesterol Axis Creates a Metabolic Co-Dependency for Brain Cancers

(2016). The use of cannabinoids as anticancer agents. Progress in Neuro-Psychopharmacology and Biological Psychiatry, 64, 259-266. https://doi.org/https://doi.org/10.1016/j.pnpbp.2015.05.010

• Click here for the Plain English Summary of the above paper by Guillermo Velasco Associate Professor of the Department of Biochemistry and Molecular Biology I, University Complutense of Madrid and member of the board of directors of Observatorio Español de Cannabis Medicinal.

Towards an Evidence-Informed Value Scale for Surgical and Radiation Oncology: a Multi-Stakeholder Perspective. The Lancet Oncology, vol. 20, no. 2, 2019, doi:10.1016/s1470-2045(18)30917-3. https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(18)30917-3/fulltext

Guiding Principles on Reasonable Agreements between Patient Advocates and Pharmaceutical Companies, Workgroup of European Cancer Patient Advocacy Networks (WECAN), October 2018. https://www.mpeurope.org/legal_agreements/wp-content/uploads/2018/11/Guiding-Principles_final-document.pdf

Rare Cancers: the Landscape Is Changing. Expert Opinion on Orphan Drugs, vol. 6, no. 9, 2018, pp. 509–511., doi:10.1080/21678707.2018.1504676. https://www.tandfonline.com/doi/full/10.1080/21678707.2018.1504676

Moving Forward toward Standardizing Analysis of Quality of Life Data in Randomized Cancer Clinical Trials. Clinical Trials, vol. 15, no. 6, 2018, pp. 624–630., doi:10.1177/1740774518795637 https://journals.sagepub.com/doi/abs/10.1177/1740774518795637

Statistical Analysis of Patient-Reported Outcome Data in Randomised Controlled Trials of Locally Advanced and Metastatic Breast Cancer: a Systematic Review. The Lancet Oncology, vol. 19, no. 9, 2018, doi:10.1016/s1470-2045(18)30418-2. https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(18)30418-2/fulltext

Towards Sustainable Cancer Care: Reducing Inefficiencies, Improving Outcomes—A Policy Report from the All.Can Initiative. Journal of Cancer Policy, vol. 13, 2017, pp. 47–64., doi:10.1016/j.jcpo.2017.05.004. https://www.sciencedirect.com/science/article/pii/S221353831730019X?via%3Dihub

European Association for Neuro-Oncology (EANO) guidelines for palliative care in adults with glioma, The Lancet Oncology, Volume 18, No 6, e330-e340, June 2017. http://www.thelancet.com/pdfs/journals/lanonc/PIIS1470-2045(17)30345-5.pdf

European Reference Networks (ERNs): A New Initiative to Increase Collaborative, Cross- Border Approaches to Treating Brain Tumor Patients , World Federation of Neuro-Oncology Societies Magazine, ISSN 2518-6507, Volume 2 (2017), Issue 2. https://www.eano.eu/fileadmin/content/News_magazine/WFNOSM_2_2017_2.pdf

Patient Value: Perspectives from the Advocacy Community. Health Expectations, vol. 21, no. 1, 2017, pp. 57–63., doi:10.1111/hex.12628. http://onlinelibrary.wiley.com/doi/10.1111/hex.12628/full

Analysing data from patient-reported outcome and quality of life endpoints for cancer clinical trials: a start in setting international standards, The Lancet Oncology, Volume 17, No. 11, e510–e514, November 2016. http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(16)30510-1/fulltext?utm_source=TLOweekly05.10.16&utm_medium=email&utm_campaign=TLOweekly

The UK Top 10 Clinical Research Priorities In Neuro-Oncology. Neuro-Oncology, vol. 17, no. suppl 8, 2015, doi:10.1093/neuonc/nov283.01. https://academic.oup.com/neuro-oncology/article/17/suppl_8/viii16/2472660

A Catalyst for Change: The European Cancer Patient's Bill of Rights. The Oncologist, vol. 19, no. 3, 2014, pp. 217–224., doi:10.1634/theoncologist.2013-0452. http://theoncologist.alphamedpress.org/content/early/2014/01/31/theoncologist.2013-0452.full.pdf#page=1&view=FitH

Rare Cancers Europe (RCE) Methodological Recommendations for Clinical Studies in Rare Cancers: a European Consensus Position Paper. Annals of Oncology, vol. 26, no. 2, 2014, pp. 300–306., doi:10.1093/annonc/mdu459. https://academic.oup.com/annonc/article/26/2/300/2800588

Demystifying Palliative Care. European Association of NeuroOncology Magazine, vol. 4, no. 3, 2014, pp. 127–128. http://www.kup.at/journals/inhalt/1650.html

Banned! European Association of NeuroOncology Magazine, 2014, vol. 4, no. 2, pp. 85-86. http://www.kup.at/journals/inhalt/1622.html

Greater Collaboration Leads to Greater Knowledge and Hope. The First World Summit of Brain Tumour Patient Advocates Takes Place in Lafayette, California Just Prior to SNO/WFNO 2013. European Association of NeuroOncology Magazine, vol. 4, no. 1, 2014, pp. 39-41 http://www.kup.at/journals/inhalt/1601.html

Exploratory Research into Cancer Patients’ Attitudes to Clinical Trials. ECancer Medical Science, 2014, doi:10.3332/ecancer.2014.432. http://ecancer.org/journal/8/432-exploratory-research-into-cancer-patients-attitudes-to-clinical-trials.php

Searching for an Anchorage in an ‘Unmoored State’. How can Patients with Brain Metastases be Helped by Brain Tumour Patient Advocacy and Support Organisations. European Association of NeuroOncology Magazine, vol. 3, no. 3, 2013, pp. 145-147 http://www.kup.at/journals/inhalt/1576.html

When Personalised Medicine Meets HTA: Are we on Target? European Association of NeuroOncology Magazine, vol. 3, no. 2, 2013, pp. 72-73 http://www.kup.at/journals/inhalt/1552.html

The Role and Support of Caregivers: We Also Ride the Brain Tumour Roller Coaster. European Association of NeuroOncology Magazine, vol. 3, no. 1, 2013, pp. 31-32 http://www.kup.at/journals/inhalt/1507.html

Patient Advocates and Guidelines Development: Token Involvement or Meaningful Input? European Association of NeuroOncology Magazine, vol. 2, no. 3, 2012, pp. 140-141 http://www.kup.at/journals/inhalt/1484.html

Count me in... European Association of NeuroOncology Magazine, vol. 2, no. 2, 2012, pp. 98-99 http://www.kup.at/journals/inhalt/1458.html

What you don’t know won’t hurt you. European Association of NeuroOncology Magazine, vol. 2, no. 1, 2012, pp. 50-51 http://www.kup.at/journals/inhalt/1420.html

Why do we need brain tumour patient advocates? European Association of NeuroOncology Magazine, vol. 1, no. 1, 2011, p. 47 http://www.kup.at/journals/inhalt/1369.html

Oliver, Kathy, and Denis Strangman. The First Documented, Modern-Day Brain Tumour Surgery for a Glioma: Published to Commemorate the 125th Anniversary of Rickman John Godlee's Landmark Operation on November 25, 1884. The International Brain Tumour Alliance (IBTA), 2009. https://elibrary.westminster.gov.uk/client/en_GB/wcc/search/detailnonmodal/ent:$002f$002fSD_ILS$002f0$002fSD_ILS:514688/one?qu=Strangman%2C+Denis.&ic=true&ps=300 (available in hard copy only)

Oliver, Kathy, and Denis Strangman. The First Walk around the World for Brain Tumours & the International Brain Tumour Awareness Week (21-27 October 2007). International Brain Tumour Alliance, 2008. https://catalogue.nla.gov.au/Record/4391434 (available in hard copy only)

Combining Equity and Autonomy: The Debate on Access to Medicines. British Journal of Neuroscience Nursing, vol. 4, no. 12, 2008, pp. 570–571., doi:10.12968/bjnn.2008.4.12.31960. https://www.magonlinelibrary.com/doi/abs/10.12968/bjnn.2008.4.12.31960

Out of the Shadows. The Parliament Magazine, Feb. 2008, pp. 40–41. https://theibta.org/wp-content/uploads/2014/12/TheParliamentMagFeb08.pdf

Allies in the Fight against Brain Tumours. British Journal of Neuroscience Nursing, vol. 4, no. 2, 2008, pp. 56–58., doi:10.12968/bjnn.2008.4.2.28216. https://www.magonlinelibrary.com/doi/abs/10.12968/bjnn.2008.4.2.28216

Alliance Calls for More Research into Brain Tumours. British Journal of Neuroscience Nursing, vol. 3, no. 11, 2007, pp. 532–532., doi:10.12968/bjnn.2007.3.11.532. https://www.magonlinelibrary.com/doi/abs/10.12968/bjnn.2007.3.5.23438

Brain Tumour Treatments: the View of Patients and Caregivers. British Journal of Neuroscience Nursing, vol. 3, no. 5, 2007, pp. 194–196., doi:10.12968/bjnn.2007.3.5.23438. https://www.magonlinelibrary.com/doi/abs/10.12968/bjnn.2007.3.5.23438