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Brain Tumour Support Group

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Projects

On this page you can find out about current research projects and how to join them.

TeleMAST - Psychosocial Support for patients and carers

FACESup - Support and resources for carers

 

TeleMast Project

An NHMRC funded project being run by Menzies Health in conjunction with the Princess Alexandra Hospital, Griffith University and Cancer Council Queensland

FACESup

An unfunded project to assist carers being run by Griffith University in conjunction with Deakin University, and University of Southern Denmark

Details

Dear Family Member,

 

We are writing to seek your assistance with a project, An m-health intervention to support family members after brain cancer diagnosis: information, peer support and facilitating gratitude using Facebook (FACESup). (GU Ethics Ref. No: 2020/616). We know that supporting a person with brain cancer is difficult and influences your ability to access support and information. This study aims to provide the delivery of information and support via Facebook or usual support group.

 

This innovative study which explores if using a Mobile-health intervention will improve the access of healthcare information and support for family care-givers of persons with brain cancer by developing and evaluating the effectiveness of an online intervention, which provides information, peer support and facilitates gratitude using Facebook.  

 

Would you be willing to help us with this important project? 

 

By taking part in this study, you will be helping us to evaluate if m-health using closed Facebook can be used to deliver information, peer support and facilitates gratitude and understand the experience to improve your wellbeing and reduce your unmet support needs. M-health is a health practice presented using mobile or personal digital devices.

 

Participation in the study will involve either being in the intervention group FACESup and staying connected via Facebook for a ten-week delivery of online information and peer support. The intervention group will complete online surveys at the start, week 10 and week 18 and a telephone interview at ten weeks. The total time would be over 18 weeks.

 

Or being in the control group and completing an online survey which will take approximately 30 minutes of your time at the start, week 10 and week 18 and a telephone interview at ten weeks. The total time would be over 18 weeks.

 

If you would like to participate in this study, we ask that you read the information sheet at the start of the online survey, and complete the online survey. Using the link below.

https://prodsurvey.rcs.griffith.edu.au/prodls200/index.php/433753?lang=en

 

You can choose if you wish to be in the FACESup intervention group or normal support group.

 

If you would prefer not to participate, please disregard this letter.

 

If you have any questions about this project please contact

Dr Elisabeth Coyne by telephone: 0403021699 or email: e.coyne@griffith.edu.au

 

We thank you very much in advance for your support.  

 

Yours sincerely

 

Dr Elisabeth Coyne     

Griffith University