Brain Tumour Support Group

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About Us

Meet your facilitators

 Andrew Hamiton 
It's not very glamorous. It's not even visible, and until something is wrong, most of us don't give it a moment's thought. The brain is an amazing, complex, necessary organ in the body and when it gets sick, it is a big deal. I know. My brain succumbed to a Grade 4, Glioblastoma Multiforme (GBM), brain tumour; BRAIN CANCER!!!

That was in May 2008. Statistically speaking, I was lucky to see the end of the year, let alone as long as I have been. How can this be? Surely having a 5 cm mass, pressing on the important bits of my brain will do some damage? It did. Apart from a blinding headache, I suddenly lost the ability to speak and could no longer stand. So began my cancer journey.

Over the next 3 years, I had 3 craniotomies; 2 of which were performed awake, oral chemo and radiation, plastic surgery to rebuild my fragile skull and countless medications, rehab and various medical appointments. I've been through the mill, but I'm still here to talk about it.

On the afternoon of 24 December 2019, I was struck now with what is known as S.M.A.R.T. Syndrome. “SMART syndrome (stroke-like migraine attacks after radiation therapy) is a rare condition that involves complex migraines with focal neurologic findings in patients following cranial irradiation for central nervous system malignancies.” I now have a month or more of rehabilitation therapy to get back to what was normal for me.

Statistics are one thing, but everyone is different. I'm one grateful anomaly.

Julia Robertson

Julia was diagnosed with a brain tumour in 2003, surgery in 2011 identified it as an atypical colloid cyst. No recurrence since then.

Julia Robertson is currently completing her Master of Global Public Health at Griffith University. Julia completed her Bachelor of Psychological Science in 2019 at Griffith University.
Julia is active in the area of patient advocacy, disability and inclusion, currently a member of the Queensland Disability Network, the Metro South Partnering in Research Allied Health and Consumer Collaboratory (PRACC) and actively involved in research into supportive care for people living with brain tumour, their families, carers and clinicians. She was the Queensland representative for Brain Tumour Alliance Australia for three years.